Chapter 2 References

Where possible we have provided additional details of websites referenced, see the Support Directory.

Page 27 Background Reading
“Common purpose – strengthening families and neighbour to rebuild America”. Schorr L B, Anchor books, New York, 1998. This reviews interventions that work to change children’s lives in a range of American communities – a useful and inspiring overview though perhaps goes a little beyond the evidence at times.

Page 31: Community development programmes in USA
Further details of the community development programmes in the USA, based in Vermont and Missouri, can be found at www.vermontfamilyresource.org and www.ahs.state.vt.us
The following site gives very useful information on assited living for older adults – caring.com
Here’s a great link for payment support of senior care across the USA – https://www.payingforseniorcare.com/maryland

Page 31: The Beacon Project in Cornwall
Further details of the Beacon Project in Cornwall can be found at www.scientificsymposium.org/pdf/stuteley2001.pdf and www.cornwallhealth.org.uk/publichealth/ar1999/beacon_project.htm

Page 32: ‘Bowling Alone’
Bowling Alone: The Collapse and Revival of American Community by Robert D. Putnam (New York: Simon & Schuster, 2000). www.bowlingalone.com

Page 32: Social capital and health outcomes
Networks and neighbourhoods: children’s and young people’s perspectives. Morrow V. Health Development agency, 2001.This research used qualitative methods to explore the subjective experiences of 12-15 year olds’ lives, communities and social networks. It analyses the advantages and limitations of using ‘social capital’ as a concept in health-related research, discussing a number of conceptual, methodological, and theoretical limitations. It suggests that the UN Convention on the Rights of the Child constitute a framework for action. ISBN: 1842790196
www.hda-online.org.uk/documents/netneigh.pdf
Inner city development – www.theinnercity100.org and www.smf.co.uk 

Page 33: ‘Families Under Stress’
Families Under Stress: What Makes Them Resilient. McCubbin H I, McCubbin M A, Thompson A I, Han S-Y, Allen C T. (1997). www.cyfernet.org/research/resilient.html
Werner E. Resilience in development. Current Directions in Psychological Science1995;32:159-162.
Perry BD. Incubated in terror: neurodevelopmental factors in the cycle of violence. In: Osofsky J, ed. Children, youth and violence: the search for solutions. New York: Guilford, 1997;124-148.

Page 34: British Association of Counsellors
British Association for Counselling and Psychotherapy www.bac.co.uk/skipintro.htm 

Page 35: ‘Evolution or Revolution’ Hilton Davis 1998

Page 36: Housing
Thomson H, Petticrew M, Morrison D. Health effects of housing improvement: systematic review of intervention studies. BMJ. 2001 Jul 28;323:187-90. 

Page 38: Health care for ethnic minorities
‘Sharing the news’ by Robina Shah. The Mental Health Foundation 1998. www.mentalhealth.org.uk (This is a training pack for professionals working with Asian families when they are told about their child’s disability – there is a particularly useful section on using interpreters).
Caring for Muslim patients: Sheikh A and Gatrad A R.. Radcliffe Medical Press Abingdon, 2000.
E Webb, Health Care for Ethnic Minorities, Current Paediatrics, 2000, 10, 184-190
Kagitcibasi C. Family and human development across cultures; a view from the other side. Mahwah, New Jersey: Lawrence Erlbaum Associates, 1996; 

Page 38: Bridging cultures in our schools
Bridging Cultures in our Schools www.wested.org
‘Health care for ethnic minorities’ – Webb E. Current paediatrics 2000. 10, 184-190

Page 38: Genetics of reading and spelling
Schulte-Körne, G. (2000) Genetics of reading and spelling disorder, Journal of Clinical Child Psychology, 42, 985-8. 

Page 39: Review (Cochrane)
Hodnett ED, Roberts I. Home-based social support for socially disadvantaged mothers. Cochrane Database Syst Rev. 2000;(2).
Olds DL, Kitzman H.. Can home visitation improve the health of women and children at environmental risk? Pediatrics. 1990 Jul;86(1):108-16.
Olds DL, Eckenrode J, Henderson CR Jr, Kitzman H, Powers J, Cole R, Sidora K, Morris P, Pettitt LM, Luckey D. Long-term effects of home visitation on maternal life course and child abuse and neglect. Fifteen-year follow-up of a randomized trial.
JAMA. 1997 Aug 27;278(8):637-43.
Olds D, Henderson CR Jr, Cole R, Eckenrode J, Kitzman H, Luckey D, Pettitt L, Sidora K, Morris P, Powers J. Long-term effects of nurse home visitation on children’s criminal and antisocial behavior: 15-year follow-up of a randomized controlled trial.
Hodnett and Roberts 1997; non-Cochrane review – Olds and Kitzman 1993; 3 other reviews – Hodnett 1997 A, 1997 B, Ray and Hodnett 1997. 

Page 39: ‘Evolution or Revolution’ Oakley 1998

Page 39: Current research by Oakley and colleagues
For details of Oakley and colleagues’ research see the SSRU: Childhood Studies website at The Institute of Education, London www.ioewebserver.ioe.ac.uk/ioe/cms/get.asp?cid=1424&1424

Page 39: Public health home visiting
www.city.hamilton.on.ca/sphs/ephpp/PractMan/HomeVisit%20PM.pdf 

Page 41: Adult mental health
Oates, M. (1997) Patients as parents: the risk to children, British Journal of Psychiatry, 170(suppl. 12), 222-7. 

Page 42: Young carers
References for young carers – www.childrenssociety.org.uk www.youngcarers.hants.org.uk
Becker, S., Aldridge, J., Dearden, C. (1998) Young carers and their families, Blackwell Science, Oxford 

Page 43: Parents with learning difficulties
Valuing people: a new strategy for learning disability for the 21st century. Department of Health.
Booth, T. and Booth, W. (2000) Against the odds: growing up with parents who have learning difficulties, Mental Retardation, 38, 1-14. 

Page 44: Parental illness
www.doh.gov.uk/public/tablecnote.htm
Information sheets are published by the American Academy of Child and Adolescent Psychiatry – ‘Facts for Families’. www.aacap.org 

Page 44: HIV
A randomised controlled trial of different approaches to universal antenatal HIV testing: uptake and acceptability. Annex: Antenatal HIV testing: assessment of a routine voluntary approach. WM Simpson, FD Johnstone, FM Boyd, DJ Goldberg, GJ Hart, SM Gormley, BA Hamilton. Health Technology Assessment 1999, Volume 3, number 4. www.ncchta.org/execsumm/summ304.htm
Telingator, C.J. (2000) Children, adolescents, and families infected and affected by HIV and AIDS, Child & Adolescent Psychiatric Clinics of North America, 9(2), 295-312, vi.
New, M., Melvin, D., Trickett, S. (1998) Community support to families living with HIV in London: an agency overview, AIDS Care, 10(2), 191-6.
Boulton, M., Beck, E., Walters, S., Miller, D. (1999) General practice and the care of children with HIV infection: 6 month prospective interview study, BMJ, 319, 232-5.
Sharland, M., Gibb, D., Tudor-Williams, G., Walters, S., Novelli, V. (1997) Paediatric HIV Infection, Archive of Disease in Childhood, 76(4), 293-6.
Gibb, D., Masters, J., Shingadia, D., Trickett, S., Klein, N., Duggan, C. et al. (1997A) Family clinic-optimising care for HIV infected children and their families, Arch. of Dis. of Child,77(6), 478-82.

Page 46: Substance misuse
Home Office (1998) Home Office Bulletin, Statistics of Drug seizures and Offenders dealt with, United Kingdom 1997, HMSO, London.
Alcohol concern (1997) Under the influence: Coping with parents who drink too much,Alcohol Concern, London.
Childline (1997) Beyond the Limit: Children who live with Parental Alcohol Misuse, Childline, London.
Burns, E. C., O’Driscoll, M., Watson, G. (1996) The Health and development of children whose mothers are on the methadone maintenance, Child Abuse Review, 5, 113-22.
Barth, R.P., Needell, B. (1996) Outcomes for drug exposed children four years post adoption,Children and Youth Services Review, 18, 37-56.
Besharov, D. J (ed) (1994) When Drug addicts have children Reorientating Child welfare’s response, Child Welfare League of America.
Barth, R. P., Pietrzak, J., Ramler, M. (eds) (1993) Families living with drugs and HIV, Guildford Press, New York.
Kearney, P. and Ibbetson, M. (1991) Opiate dependent women and their babies: a study of the multidisciplinary work of a hospital and a local authority, British Journal of Social work,21, 105-26.
Dorn, N. and South, N. (1987) A Land fit for Heroin? Drug policies, Prevention and Practice, Macmillan, London.
Forrester, D. et al. (2000) Parental substance misuse and child protection, Child Abuse review, 9, 235-46. 

Page 48: Communication difficulties
Chan LM, Lui B. Self Concept among hearing Chinese children of Deaf parents. American Annals of the Deaf. 1990. 135(4): 299-305.
Frank H. Psychodynamic conflicts in hearing children of deaf parents. International Journal of Psychoanalytic Psychotherapy. 1978-79. 7:305-15
Jones E, Strom R, Daniels S. Evaluating the success of deaf parents. American Annals of the Deaf. 1989. 134(5): 312-6
Schiff NB, Ventry. Communication problems in hearing children of deaf parents. Journal of Speech and Hearing Disorders. 1976. 41(3): 348-358.
Collis GM, Bryant CA. Interactions between blind parents and their young children. Child:Care , Health and Development. 1981. 7(1): 41-50